Adults on the Spectrum - Autism Research Institute https://autism.org/category/webinar/adults-on-the-spectrum/ Advancing Autism Research and Education Wed, 10 Apr 2024 23:23:39 +0000 en-US hourly 1 https://wordpress.org/?v=6.5.3 Autism & Aging – Cognition and Well-being https://autism.org/aging-cognition-wellbeing/ Tue, 09 Apr 2024 18:53:35 +0000 https://autism.org/?p=17829 When we become older, we all hope to become wiser and happier, but we also know that someday we will decline. This decline is apparent in both cognition and health. This is true for everyone, although large individual differences exist in when and how fast one declines. Whether or

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When we become older, we all hope to become wiser and happier, but we also know that someday we will decline. This decline is apparent in both cognition and health. This is true for everyone, although large individual differences exist in when and how fast one declines. Whether or not being autistic impacts the when and how of this decline is the central question that will be addressed in the current talk. You will learn that the findings are mixed and the literature is still scarce. However, in general the future outlook seems highly similar for autistic and non-autistic people even though autistic people do seem to have an increased risk for specific health related conditions. I will touch upon topics such as menopause, camouflaging, and feelings of being in control as these are all relevant factors for one’s well-being.

This is a joint presentation by ARI and The World Autism Organisation.

The speaker:

Hilde Geurts, Ph.D., is currently a professor in clinical neuropsychology and head of the section Brain & Cogntion at the Department of Psychology of the University of Amsterdam. Dr. Geurts studies autism and ADHD. Her starting point is the neurodiversity perspective, and she focuses on cognition (especially cognitive control/executive functioning), inter & intra individual variability, quality of life as well as interventions across the life span.

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How Games Foster Social Connection https://autism.org/how-games-can-help-teach-social-skills/ Thu, 21 Mar 2024 04:33:48 +0000 https://last-drum.flywheelsites.com/?p=16610 Learn about research that suggests that fostering game skills may serve as a lifelong bridge to engaging with peers. Handouts are online HERE The speakers: Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston,

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Learn about research that suggests that fostering game skills may serve as a lifelong bridge to engaging with peers.

Handouts are online HERE

The speakers:
Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston, and a Ph.D. in Educational Psychology and Individual Differences from University of Houston. She has previously lectured at University of Houston and the University of Wolverhampton. Prior to entering academia, Gray was a counselor for adolescents with neurodevelopmental conditions. “I am interested in understanding how people with autism spectrum condition see the social world. Specifically, I explore individual differences in social processing and how these differences often found in people with autism also exist in the general population. I also investigate anthropomorphism, or seeing the human in the non-human, and how this relates to social processing in autism. To investigate this, I am developing virtual reality techniques that allow for anthropomorphic experiences. My other research interest lies more broadly in embodied social processing. I am particularly interested in how movement can affect the way we see ourselves and our social partners, and how this can be used to understand special populations.”

Dr. Liam Cross “I have a BSc in Psychology from Lancaster University and a PhD in Psychology from Leeds Beckett University. My PhD focused on how and why engaging in Coordinated Rhythmic Movement affects interpersonal relations and group processes and relations. Basically how moving in coordinated ways (dancing, singing or even walking) fosters greater affiliation, cooperation & conformity towards our co-actors & changes in our social identity.” Dr. Cross’s research interests include whether the theory of mind deficits in those with ASD can be alleviated by changing the object of evaluation in these measures from human to cartoon and animal stimulus, and, most recently the overlap between tabletop games and autism.

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Gender and Autism https://autism.org/gender-and-autism/ Tue, 06 Feb 2024 04:04:41 +0000 https://last-drum.flywheelsites.com/?p=16605 Gray Atherton, Ph.D., details the socialization of the female gender experience and how that plays into autism gender biases. The speaker discusses the experiences of autistic women, highlighting that gender is a critical barrier to diagnosis and care. Atherton details recent investigations into implicit gender biases in autism and their impact on

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Gray Atherton, Ph.D., details the socialization of the female gender experience and how that plays into autism gender biases. The speaker discusses the experiences of autistic women, highlighting that gender is a critical barrier to diagnosis and care. Atherton details recent investigations into implicit gender biases in autism and their impact on medical care and autism understanding. She evidences contemporary shifts in the zeitgeist of gender and autism and provides suggestions for future research. The presenter offers sources and acknowledgments before the Q&A, where she discusses masking, minorities and misdiagnosis, videogaming and autism, and much more. 

In this webinar:

1:00 – Agenda and introduction
4:40 – Gendered development & autism descriptions
8:00 – Female protective effect
10:00 – Male brain theory
12:35 – Gender and autism
16:20 – Masking
18:50 – Study 1: Age of diagnosis and quality of life
26:10 – Effects of late diagnosis
30:00 – Gender biases and a new ratio
35:12 – Study 2: Implicit gender biases against female autism
40:11 – Findings
42:40 – Study 3: The zeitgeist of gender and autism
44:50 – Summary and future research
48:08 – Q&A

Female gender experiences

Atherton discusses the construction and socialization of the female gender experience, underscoring observed differences in toys, colors, expectations, and language used with female versus male children (2:15). She explains that females show more relational aggression (indirect) compared to males by age four (4:40) and tend to consider hierarchies and reputation in social interactions and communication from a very young age (6:15). These differences, the speaker continues, result, in part, from contrasting developmental pressures and environments between females and males. 

Gender and autism

Historical descriptions of autism are skewed toward the male presentation due to classic gender biases (6:40). Atherton outlines two prominent hypotheses that aim to explain observed gender differences in autism: the Female Protective Effect (8:00) and the Male Brain Theory (10:10). While these theories have been widely investigated, contemporary understandings of gender and autism reveal them to be limited in scope and understanding. 

Atherton cites research showing higher rates of gender diversity in autism, where transgender and gender-diverse people are three to four times more likely to be autistic than cisgender people (12:35). She discusses masking (16:20), or the process of copying other people and learning how to socialize, and how repetitive behaviors and other signs of autism can be easily mistaken for the expected “nice” “quiet” or “organized” qualities of girls and women (13:35)

Age of diagnosis and quality of life

The speaker details a recent investigation into the effect that age at autism diagnosis has on an individual’s quality of life (QoL) (18:50). The study found that women are significantly more likely to be diagnosed in adulthood compared to men and that women actually reported higher thresholds of autistic traits, but were still missed by practitioners (21:13). QoL scores were negatively associated with age of diagnosis and masking. In a subsequent interpretive phenomenological analysis of lived autistic experiences, participants reported that their gender kept them from receiving a diagnosis – that they would have received a diagnosis much younger if they were male (22:16). These findings suggest that women do have autism at least as frequently as men and that women are primarily underdiagnosed in adolescence, which leads to lower overall QoL (25:05).

A study by Rodgaard et al., 2021 found that women who received a late diagnosis were misdiagnosed at least once with depression, anxiety, sleep issues, etc. (28:35). Atherton underscores that without early diagnosis and proper medical care, individuals are more likely to develop co-occurring conditions. In fact, 26% of late-diagnosed women have co-occurring conditions compared to 13% of late-diagnosed males and 3% of the general population (26:10)

Implicit gender biases

The presenter outlines a study by Burrow et al., 2022 where researchers conducted direct assessments of autism symptoms at six to nine (6-9), twelve to fifteen (12-15), twenty-four (24), and thirty-six to sixty months (36-60) (30:00). Data revealed a 1:1 gender ratio of male/female children with “high concern” for autism – a stark contrast to the historically accepted 4:1 ratio. Clinician notes often referenced ‘monitoring’ girls over time but not needing a diagnosis in the same way as the boys did (33:00). These findings, Atherton asserts, suggest that although there is no biological bias, there seems to be different symptoms in females, perhaps as a result of female socialization, and subsequent bias in autism understandings and diagnosis.

 To determine whether there are implicit biases held against female autism, Atherton and her team paired vignettes of autistic descriptors with male and female names and asked participants to say how autistic each vignette seemed (35:12). She explains that implicit biases may never be cognizantly acted upon, but that they still affect the way we understand and respond to information (38:15). Results from the study showed that participants were slower to respond and made more mistakes when autistic descriptors were paired with female names compared to male names. Item-by-item differences were also recorded, where words that were explicitly autistic were viewed as male, and those that were the opposite of autistic were considered female (40:11). The speaker asserts these findings show implicit biases associated with females being autistic. 

Conceptualizing autism

To properly care for autistic individuals, it is critical to understand the zeitgeist or cultural climate around autism and gender. To test this, the speaker collected photos that represented autism from 163 people. Many participants sent pictures of females and wrote about the struggles that autistic women face. Many participants also noted that we need to reimagine autism in accordance with gender (42:40)

The speaker summarizes her presentation, highlighting the difficulties in diagnosis and care faced by autistic females, that women have the same amount or more autistic traits compared to men, that there are implicit biases against autism as a female experience, and that the cultural zeitgeist of autism and gender is changing according to the unique struggles and voices of autistic females (44:50). Atherton provides signup information for individuals interested in participating in future research projects about female autism trait presentation, gender diversity in autism, and adult experiences of neurodiverse people, specific to improving QoL (45:50). She provides references and thanks before the Q&A session (48:08)

The speaker:
Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston, and a Ph.D. in Educational Psychology and Individual Differences from University of Houston. She has previously lectured at University of Houston and the University of Wolverhampton. Prior to entering academia, Gray was a counselor for adolescents with neurodevelopmental conditions. “I am interested in understanding how people with autism spectrum condition see the social world. Specifically, I explore individual differences in social processing and how these differences often found in people with autism also exist in the general population. I also investigate anthropomorphism, or seeing the human in the non-human, and how this relates to social processing in autism. To investigate this I am developing virtual reality techniques that allow for anthropomorphic experiences. My other research interest lies more broadly in embodied social processing. I am particularly interested in how movement can affect the way we see ourselves and our social partners, and how this can be used to understand special populations.”

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Effective Coping Strategies for Sensory Differences and Executive Function https://autism.org/compensation-skills/ Tue, 30 Jan 2024 17:15:40 +0000 https://last-drum.flywheelsites.com/?p=16895 Drs. Greg Wallace and Goldie McQuaid share their research on strategies autistic adults develop to compensate for non-social challenges they experience, including sensory sensitivities and executive function differences. Handouts are online HERE (printable PDF) The speakers: Greg Wallace, Ph.D., is an Associate Professor in the

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Drs. Greg Wallace and Goldie McQuaid share their research on strategies autistic adults develop to compensate for non-social challenges they experience, including sensory sensitivities and executive function differences.

Handouts are online HERE (printable PDF)

The speakers:

Greg Wallace, Ph.D., is an Associate Professor in the Department of Speech, Language, and Hearing Sciences at The George Washington University. His research focuses on neuropsychological and structural brain development in autism spectrum disorder and other neurodevelopmental disorders across the lifespan and their impacts on real-world outcomes. He is also particularly interested in eating-related behaviors and their cognitive and neural correlates in typical and atypical (e.g., autism spectrum disorder) development. Dr. Wallace has published extensively and presented his work widely on these and related topics.

Goldie McQuaid, Ph.D., is research faculty in the George Mason University Department of Psychology. Before joining the JackLab, she received her Ph.D. in Theoretical Linguistics from Georgetown University, followed by post-doctoral training in developmental neuroimaging at Georgetown University Medical Center and the Autism & Neurodevelopmental Disorders Institute at George Washington University. She is a 2020-2022 Fellow in the Society for Neuroscience Neuroscience Scholars Program. Her research focuses on sex, gender, and the transition to adulthood in autism, with a particular focus on how alexithymia and camouflage impact well-being in autistic adults. Currently, she holds a National Institutes of Health K01 award that will allow her to conduct research related to emotion processing, gender identity, and risk for anxiety and depression in autistic adults.

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From Special to H.A.P.P.Y. https://autism.org/from-special-to-happy/ Tue, 12 Dec 2023 12:01:07 +0000 https://kaput-rooftop.flywheelsites.com/?p=17118 Peter Vermeulen, Ph.D., considers a positive approach to psychoeducation for autistic individuals. He draws on over 25 years of experience to illustrate contemporary changes in autism intervention focus and discourse. The speaker outlines critical characteristics of autism psychoeducation and underscores the need to create measurements and questionnaires based on well-being and happiness.

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Peter Vermeulen, Ph.D., considers a positive approach to psychoeducation for autistic individuals. He draws on over 25 years of experience to illustrate contemporary changes in autism intervention focus and discourse. The speaker outlines critical characteristics of autism psychoeducation and underscores the need to create measurements and questionnaires based on well-being and happiness. He outlines a new psychoeducation program for autism, focusing on skill development, self-understanding, and quality of life. Vermeulen outlines critical understandings to inform positive psychoeducation before the Q&A session. 

Printable handouts (.pdf) are online HERE

This is a joint presentation by ARI and the World Autism Organisation.

In this webinar

0:00 – 6:20 – Introductions
6:40 – Psychoeducation and autism
9:27 – Self-knowledge in autism
12:00 – Shifting the focus of psychoeducation
14:50 – Pychoeducation must be meaningful and functional
18:15 – Pychoeducation must be positive
20:15 – Psychoeducation must be fun and interactive
23:28 – Pschoeducation must put autism into context
28:25 – Psychoeducation must focus on wellbeing
35:30 – Four pillars of psychoeducation for autism
39:00 – H.A.P.P.Y.
41:50 – Q&A

Introduction

Vermeulen defines psychoeducation as the “practice of explaining a diagnosis to people who have the diagnosis” and notes that this is a relatively new area of study within autism (6:40). He draws on past experiences to illustrate how the focus of psychoeducation has shifted over the last quarter century, highlighting that it is autistic people themselves who are entitled to learn about autism first (7:35). The speaker cites a study which found that autistic children “know” they are different and have some notion of what their differences and difficulties are. However, he continues, many have difficulty understanding and developing a nuanced and coherent concept of self (10:34). Vermeulen emphasizes the empowering potential of well-constructed psychoeducation. 

Characteristics of psychoeducation

The presenter describes his first published interactive psychoeducation program for autism, entitled, I Am Special (12:00). In the 25 years since its publication, Vermeulen continues, he realized that the focus of autism psychoeducation needed to shift from a clinical explanation and deficit-centered language to include information that autistic people actually need in a way that is easy for them to understand and empowers them to know themselves (13:55). He discusses four critical aspects of successful autism psychoeducation: 

Make it meaningful and functional

The word functional, in this sense, means that a given program is administered in a way that participants can relate to the information and, therefore, apply it to their lives almost immediately (14:50). He underscores that abstract and general information does not teach coping skills and that we must use language that reinforces self-understanding and builds navigating/coping skills (16:00). He provides this example: 

Instead of: You have difficulty with these kinds of situations.

We say: These kinds of situations can be difficult for you because of the sensory environment and… These are some things you can try that may help with …”

Make it positive

Vermeulen asserts the need to do away with the deficit perspective/discourse and focus on the positive aspects of autism. Individuals need to understand the benefits of their differences and their strengths. There are several positive autistic role models in the media. However, he continues, referring to things an individual can realistically achieve is also essential. Most people aren’t geniuses, so personal goals should be attainable – make it positive, but be honest (18:15)

Make it fun and interactive

The presenter states that activities in autism psychoeducation programs should be interactive and encourage participants to do something. In his first publication, I Am Special, the activities were simple worksheets like those children receive in school, which can be boring and tedious (20:15). Vermeulen asserts the benefits of including activities that involve the surrounding environments. For example, he continues, have someone trace their body on a large piece of paper and then measure the lengths of each part (22:14).

Put autism into context

Vermeulen reminds viewers that autism is not the only title autistic people wear; it is not their sole defining characteristic. He urges families and practitioners not to make autism bigger than it is. This diagnosis is only part of each person, and psychoeducation programs must be sure to put this in context (23:28). The speaker recounts an interaction with someone who hated the I Am Special course because he didn’t want to be special; he wanted to be just like everyone else (25:00)

Focus on wellbeing

He touches on the concept of neuroharmony and the need to focus on our commonalities instead of our differences (26:15). Maslow’s Hierarchy of Needs says that we all have physiological needs and safety needs, we all want to belong, have self-esteem, and be fulfilled (30:00). Vermeulen asserts that in terms of behavior, mind, and necessities, no one person is so different from the next. 

A recent study on autism intervention goals found that most investigations used DSM-5 criteria or other behavioral characteristics as success measurements. Such measurements have no correlation with quality of life (QoL), age, IQ, or symptom severity (32:00). Another study found that parents and autistic children would like intervention goals to include things like happiness, self-esteem, and mental health management (33:00). The presenter asserts the need to develop questionnaires and intervention goals based on what makes autistic people happy, not about their difficulties or differences (34:30). He urges families and practitioners to shift focus from being “less autistic” to being “autistically happy.”

H.A.P.P.Y.

Vermeulen describes his most recent psychoeducation program as an autism-friendly plan for well-being. It encompasses the aspects outlined above and has adapted evidence-based well-being strategies for autistic individuals (35:30). Vermeulen has created four pillars to inform programs for happiness and well-being for autistic people (37:40):

  1. Happiness is within reach of all people with autism, regardless of the nature and profile of their autism, their intellectual abilities, and their age
  2. Evidence-based scientific findings should underpin a program for happiness and well-being
  3. A program for happiness and well-being should make evidence-based well-being interventions autism friendly
  4. A program should be individualized and should be what works for you

His new program, H.A.P.P.Y., uses ten evidence-based well-being strategies, including accepting and loving yourself, Good Feeling toolbox, flow activities, physical exercise, problem-focused and emotion-focused coping strategies, positive thinking, gratitude, kindness, and personal projects (learning something new) (39:00). Versions (online and physical) for children and young adults are available for individuals or groups. There is no fixed number of sessions. The speaker provides concrete examples for a Good Feeling Box and flow activities. He reiterates the need for psychoeducation programs to be more than a list of all the things an individual must do or learn (40:00). Vermeulen summarizes his presentation, underscoring the five critical aspects of psychoeducation (41:15) before the Q&A where he discusses how H.A.P.P.Y. could work for individuals with intellectual disabilities and seniors, how to find what autistic people prefer, and much more (41:50)

The speaker:

Peter Vermeulen, PhD, in Psychology and Clinical Educational Sciences, has more than 35 years of experience in the field of autism. Founder of “Autism in Context”, where autism is understood in context. Peter is an internationally respected lecturer/trainer and he presents all over the world. Peter wrote more than 15 books and several articles on autism, some of them translated into more than 10 languages. For his +30 years of work in the field of autism, he received in 2019 a Lifetime Achievement Award.

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Anthropomorphism and Autism https://autism.org/anthropomorphism-and-autism/ Tue, 24 Oct 2023 06:01:01 +0000 https://last-drum.flywheelsites.com/?p=16599 Dr. Gray Atherton, Ph.D., explores the connection between autism and anthropomorphism. She provides a brief historical and social context for anthropomorphism in our daily lives before diving into the prevalence and advantages of anthropomorphism in autism. The speaker details recent studies that challenge prevalent theories about socialization, Theory of Mind, and

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Dr. Gray Atherton, Ph.D., explores the connection between autism and anthropomorphism. She provides a brief historical and social context for anthropomorphism in our daily lives before diving into the prevalence and advantages of anthropomorphism in autism. The speaker details recent studies that challenge prevalent theories about socialization, Theory of Mind, and anthropomorphism in autism. Atherton asserts that many autistic people use anthropomorphism prolifically in everyday life and often outperform their non-autistic peers in this aspect of Theory of Mind. The presenter highlights anthropomorphism as a strength for many autistic individuals and suggests using it to support learning and interventions for autism. 

Handouts are online (.pdf) HERE

In this webinar:

1:58 – What is anthropomorphism?
5:00 – Importance of anthropomorphism
8:05 – Autism and anthropomorphism
10:00 – Social Motivation Theory of Autism
14:00 – Study 1: Theory of mind processes in autistic adolescents
18:50 – Study 2: Review of studies with anthropomorphic stimuli
23:45 – Study 3: Reading the Mind in the Eyes Test – anthropomorphized
29:00 – Study 4: Intellectual disability and emotion recognition
32:25 – Study 5: Verbal anthropomorphism and theory of mind
35:30 – Study 6: Pets and anthropomorphism in everyday life
39:50 – Recap
41:30 – Flip the narrative
46:00 – Applications and interventions
48:20 – Q & A session

History and importance of anthropomorphism

Atherton defines anthropomorphism as the attribution of human-like qualities, emotions, or behaviors to non-human entities, such as animals or objects (1:58). Examples of anthropomorphism are seen throughout history in our deities and legends, who often assume human characteristics. The speaker explains the importance of anthropomorphism in religion, connection, and socialization. She explains that wanting to understand something that isn’t human drives us to anthropomorphize and highlights that anthropomorphism is frequently related to loneliness (5:00). Atherton touches on the presence of anthropomorphism in childhood media and notes its increasing use in contemporary care work and technology (6:25)

Autism and Anthropomorphism

The presenter discusses the Social Motivation Theory of Autism and outlines publications supporting the claim that autistic people are less socially motivated than their peers (9:00). Theory of Mind (ToM), or the capacity to ascribe emotions to other people based on facial expressions and personal characteristics, is closely related to anthropomorphism. Atherton outlines a study that tested ToM in relation to a video of moving shapes. Results showed that non-autistic respondents used human-like adjectives to describe the shape interactions, while autistic participants used more concrete descriptives and less mental state language (10:56). Given the contrast in responses, researchers concluded that autistic people have lower ToM and are less likely to anthropomorphize or use human-like descriptors. Atherton describes her own professional experiences with autistic individuals as totally contrary to these assumptions and asserts the need for further exploration into ToM and autism (12:10)

Study 1: Theory of Mind processes in autistic adolescents 

To explore the Theory of Mind experiences of autistic adolescents, the speaker conducted an open-response interview and interpretive phenomenological analysis (14:00). The study revealed four overarching themes concerning how autistic people engage with ToM processes: honesty, humor, visualization, and anthropomorphism (15:00). Atherton presents sub-themes and quotes from participants that reflect their prolific use of anthropomorphism in daily life. She asserts that these findings challenge accepted notions that autistic people have low ToM and social motivation (17:23)

Study 2: Review of investigations with anthropomorphic stimuli

Although anthropomorphism isn’t often explicitly studied, many investigations use anthropomorphic stimuli as a control in comparative studies (18:50). In reviewing such studies, the speaker found that autistic individuals perform significantly better on ToM tests when the stimuli are non-human instead of human (20:00). She outlines three publications that revealed:

  1. Autistic people prefer anthropomorphized images over human ones.
  2. Autistic people actually have an advantage in this area of ToM compared to their non-autistic peers.
  3. This advantage may have to do with the expertise or familiarity that autistic people have with non-human social agents (22:30). 

Study 3: Reading the Mind in the Eyes test – anthropomorphized

Reading the Mind in the Eyes test (RME) is a classic ToM exercise where participants determine emotions based on photos of a person’s eyes. Atherton and colleagues created a cartoon (anthropomorphic) version of the RME and compared autistic and non-autistic group responses for both versions (23:45). Results showed that the non-autistic group had higher success on the human RME test but that the autistic participants outperformed their counterparts on the cartoon test (27:00). These results, the presenter posits, suggest that anthropomorphism may be a strength for autistic individuals, further challenging the preconceived notions that autistic people have low ToM and emotion recognition capabilities.

Study 4: Intellectual disability and emotion recognition

Around 40% of autistic individuals also have some co-occurring intellectual disability, and many are non-verbal. Atherton explains how communication barriers often exclude this part of the autistic community from research participation (28:00). She outlines a recent study that took these differences into account and assessed whether the prolific use of anthropomorphism revealed in previous studies defines the entire autism spectrum (29:00). Researchers used a combination of human faces and animal face filters to test ToM. They found a significant increase in correct answers for the photos with animal filters on them, suggesting participants better understand anthropomorphized stimuli compared to human faces (31:20). The presenter discusses study limitations, noting the aspect of visual salience. 

Study 5: Verbal anthropomorphism and theory of mind

To see if anthropomorphism extends beyond visual context, Atherton and colleagues used a verbal ToM Faux Pas test (32:25). They tested participants’ ability to determine whether someone said something awkward in both human and anthropomorphized stories provided in text. Similar results to previous studies were found: autistic people struggled with human-based wording but performed at the same level as, if not better than, the non-autistic group with anthropomorphized stories (34:00). Atherton asserts that these findings suggest anthropomorphism may play a critical role in how autistic people engage in perspective-taking and conceptualize ToM. 

Study 6: Pets and anthropomorphism in everyday life

As human beings, we often anthropomorphize our pets to relate to them and create connections. Atherton describes a study on differences between autistic and non-autistic groups in their anthropomorphism of pets. Results showed that the autistic group was equally attached to their pets and used similar amounts of anthropomorphism as their non-autistic counterparts. Interestingly, the presenter states, Autism Quotient scores correlated with anthropomorphism and autistic people were more likely to substitute pets for people (mediated by social avoidance) (35:30). Interpretive phenomenological analysis of 16 interviews with autistic pet owners showed that pets can often act as a social alternative and/or a social lubricant. Participants frequently noted that with animals, “you don’t have to wear a mask – they don’t know what social rules you may be breaking” (37:15)

Atherton states that these real-life examples show how autistic individuals intentionally create anthropomorphic connections to compensate for social deficits or avoidance. These intentional connections manifest in various ways, from donating to animal charities to becoming a cat behaviorist. The speaker asserts that we need to understand anthropomorphism as a strength and something that autistic people may be particularly good at. Perhaps, she continues, they are engaging with and becoming experts in anthropomorphism because it’s a way to have connections that don’t feel judgmental or forced (39:00)

The big picture

The speaker summarizes the presentation, highlighting that evidence suggests autistic people anthropomorphize at least to the same degree as their non-autistic peers and that anthropomorphism may play a role in the way autistic people conceptualize or engage in ToM and perspective-taking (39:50). She presents a diagram of the Social Motivation Theory and suggests that we flip the narrative. Instead of saying autistic people have decreased human/social motivation or recognition, we can say they have increased non-human attention to faces and understand non-humans much more (41:30)

The presenter notes that anthropomorphism may vary across developmental stages and cites a multi-age study where anthropomorphism decreased with age (44:15). She suggests leveraging anthropomorphic stimuli, like cartoons, in educational and therapeutic settings with autistic individuals. For example, a pilot study using Hololens glasses is underway, which could allow for more meaningful interactions using anthropomorphism and digital projections (46:00). Atherton invites viewers to share their real-life experiences with anthropomorphism and provides her contact information (47:15) before beginning the Q & A session (48:20)

The speaker:
Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston, and a Ph.D. in Educational Psychology and Individual Differences from University of Houston. She has previously lectured at University of Houston and the University of Wolverhampton. Prior to entering academia, Gray was a counselor for adolescents with neurodevelopmental conditions. “I am interested in understanding how people with autism spectrum condition see the social world. Specifically, I explore individual differences in social processing and how these differences often found in people with autism also exist in the general population. I also investigate anthropomorphism, or seeing the human in the non-human, and how this relates to social processing in autism. To investigate this I am developing virtual reality techniques that allow for anthropomorphic experiences. My other research interest lies more broadly in embodied social processing. I am particularly interested in how movement can affect the way we see ourselves and our social partners, and how this can be used to understand special populations.”

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LGBTQIA+ and Autism

June 13th, 2022|News, Parenting|

Contemporary research on the intersection of autism, sexuality, and gender identity asserts that autistic individuals are more likely to identify as LGBTQIA+ than the neurotypical population. Similarly, the prevalence of autism is

Understanding Social Development in ASD

June 25th, 2019|Adults on the Spectrum, Autism Spectrum Disorders, Challenging Behaviors, Educational Therapies, Infants, Social Skills, Webinar|

Dr. Matthew D. Lerner, Ph.D., discusses social development in individuals with autism. He emphasizes understanding theoretical mechanisms that underly processes generally accepted as social “skills.” The presenter outlines recent findings and discusses their implication

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Examining the Transition to Adulthood in Autism: Challenges and Opportunities in the Aim of Thriving https://autism.org/examining-transition/ Wed, 06 Sep 2023 00:21:42 +0000 https://last-drum.flywheelsites.com/?p=16927 David B. Nicholas, Ph.D., examines the transition to adulthood and its implications for autistic individuals. He presents the ecosystem mentality and discusses recent findings supporting a holistic and future-oriented integrated care system. The speaker details potential areas of capacity building within post-secondary education and employment and highlights the need

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David B. Nicholas, Ph.D., examines the transition to adulthood and its implications for autistic individuals. He presents the ecosystem mentality and discusses recent findings supporting a holistic and future-oriented integrated care system. The speaker details potential areas of capacity building within post-secondary education and employment and highlights the need for cross-sector collaboration and lifelong care. Nicholas summarizes the presentation, underscoring changes in contemporary discourse, and considers future avenues of research before the Q&A session.

This is a joint presentation by ARI and the World Autism Organisation.

Handouts are online HERE

In this webinar: 

0:00 – Autism Research Insitute introduction
1:52 – World Autism Organization introduction
4:40 – Speaker introduction
6:30 – Objectives and background
9:00 – Ecosystem mentality
10:14 – Study: Transition experiences for individuals in the autism ecosystem
11:35 – Results
13:30 – Mental health accommodations
17:28 – Recommendations
19:45 – Capacity building
24:48 – Post-secondary education
30:00 – Employment
36:07 – A new discourse
45:40 – Summary and conclusion
51:50 – Q & A

Introduction

Nicholas defines the presentation objectives and summarizes current literature on the transition experiences of autistic individuals (5:30). Specifically, he notes that support needs are not well understood across care and that the process of transitioning to adulthood requires more community/system-level support and increased focus on the individual (7:29). The presenter uses the metaphor of a pathway to illustrate the ecosystem mentality and highlights the observable increase in focus on quality of life (QoL) and community/system-level factors within the discourse (8:00)

Study: Transition experiences for individuals in the autism ecosystem

The speaker describes a grounded theory study that used 64 semi-structured interviews with autistic youth and young adults, parents, and service providers to assess the transition experiences of individuals across the autism ecosystem (10:14). Key challenges faced by many participants included the need to research, find, and wait for services, laborious and complicated application processes, and having to work extremely hard while often being unsure of how to proceed or what to seek out (11:35). Participants also reported that the adult care systems are notably distinct from child/youth services and that, when attained, adult services are often insufficient relative to the needs. Many also cited a notable lack of understanding about support needs across the diverse autism experiences, specifically surrounding mental health and autism (13:30). The presenter shares a quote to illustrate these challenges

“[The service provider] said, ‘Well, just call the police, and they’ll take her out of the house.’ I said that would be the last thing [that should be done]. I would never… have the cops take her on a mental health warrant… I knew that [individual] would kill herself if I had done that, and so that was a horrible lack of support. Complete lack of understanding of autism combined with mental health issues…. Just take her, grab her, and put her, you know, drag her to the clinic (15:10).”

Many participants also noted that services are often rooted in the medical approach or a “deficit” orientation, and many access restrictions are based on characteristics outside an individual’s control (i.e., IQ, age, level of functioning). Nicholas asserts the need for cross-sectoral support and a comprehensive approach to addressing the many challenges associated with transitioning to adulthood in autism (15:50)

Recommendations and capacity building

Despite the discussed challenges, Nicholas continues, there is a growing awareness and willingness to adapt to the diverse needs of autistic people and other neurodiverse groups. For example, many airports, libraries, transportation systems, and employers are already making strides in creating more inclusive and accommodating spaces, programs, and policies (19:20). The speaker asserts that moving forward, supports need to focus on knowledge transfer, tangible help, navigational assistance, and training/skill development (17:28). He underscores the need for stronger relationships and collaboration among diverse stakeholders and outlines three levels of capacity building (19:45)

  • Micro: individual and family support
    • Personal acceptance and flexibility in targeting individual needs
    • Increased expectations for life achievements and aspirations
    • Peer mentorship and support for parents to the role of “life coach”
  • Mezzo: program and personnel development
    • Capacity development in residential and community support
    • Staff training 
    • Stronger relationships across diverse stakeholder groups/sectors
  • Macro: Policy 
    • Increased funding, with targeted programming to adult services
    • Autistic voices in service planning and priority setting

Post-secondary education (PSE)

Nicholas discusses challenges for autistic people in accessing post-secondary education (PSE) and outlines the micro, mezzo, and macro capacities for change within this context (24:48). He considers the campus ecosystem holistically and discusses potential adjustments to course design, career/employment support, residence life, and campus policies that would accommodate autistic students (27:40). Priorities for accommodation in PSE include mentorship and peer support, supportive engagement with others across sectors, and opportunities/choices in accommodation for individuals across the autism spectrum (29:20)

Employment

The speaker emphasizes that we must think of the autism ecosystem over time as transitions occur throughout our lives (30:00). Another major transition is PSE to employment. Nicholas shares a quote (31:00)

What my son needs now is job skills… he needs to survive in this world as a young adult, with or without his parents. Help! Because not every young adult with autism has parents or has the supports, right? Whether it be parents or other family members, not everyone has that. So he needs job skills; he needs life skills and life training.”

Employment challenges reported by participants included emotional/psychological, focus/concentration, social/relational, and environmental/sensory (31:45). The presenter explains that these challenges make the pathway to adulthood much more complicated than needed. He outlines the ecosystem components of employment and highlights supports and capacity building at the individual, community, and policy levels (34:05)

A new discourse

Nicholas discusses emerging principles from this work, including intentional access (adult-based resources), multisector integrated engagement, and flexibility in resources (36:07). He highlights some characteristics of integrated navigational services, including linked networks, stigma reduction, coordination of services, and lifespan care. Study respondents specifically mentioned resource information, peer support, and individualized service as important components of navigational support services (38:25). The speaker explains how these characteristics give rise to the idea of integrated or universal care, which gives attention to the social determinants of health and accommodates individual and family needs (37:00)

Current discursive frameworks, he continues, consider transitions across the lifetime and maintain a holistic view of resources and service system interactions (40:13). Nicholas asserts that characteristics commonly associated with adulthood push the notion of a singular path, or only one way to become independent (42:10). He posits that the pinnacle of adulthood is not so much independence and as it is QoL, being, belonging, and becoming, and the pursuit of aims and dreams (44:30).

Conclusion

Nicholas summarizes the presentation and crucial points. He stresses the importance of future-oriented approaches that consider individual agency and self-determination and highlights that all of this must be done in the interest of supporting and pursuing a good life on one’s terms and belonging in community (45:40). To support these shifts in the autism ecosystem, we need timely mobilization of evidence to action, increased engagement from relevant systems and stakeholders, proactive engagement around social determinants of health, and a greater focus on QoL as the pinnacle in this journey towards adulthood (47:14). The speaker shares research recommendations and sources (48:45) before the Q & A (51:50)

Presented by:

David Nicholas, PhD is a Professor and Associate Dean, Research and Partnerships in the Faculty of Social Work at the University of Calgary. He has been engaged in the Autism community for many years, and has been involved in multiple studies and capacity building initiatives addressing transition, employment and post-secondary education. His research addresses quality of life, disability rights and pathways to thriving for Autistic youth and adults. His work has been presented worldwide, with over 200 peer reviewed publications. Dr. Nicholas has received numerous awards for scholarship impact and teaching excellence, and he is a Fellow of the Canadian Academy of Health Sciences.

 

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How Age – and Age of Diagnosis – Affect Quality of Life https://autism.org/age-and-diagnosis/ Tue, 02 May 2023 20:25:26 +0000 https://last-drum.flywheelsites.com/?p=15812 Dr. Gray Atherton discusses the critical role of age and age of diagnosis in shaping the quality of life for autistic individuals. She provides a brief history of autism understanding and considers how changes in diagnostic criteria and cultural stigmas have affected the “lost generation.” The speaker details two studies that emphasize

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Dr. Gray Atherton discusses the critical role of age and age of diagnosis in shaping the quality of life for autistic individuals. She provides a brief history of autism understanding and considers how changes in diagnostic criteria and cultural stigmas have affected the “lost generation.” The speaker details two studies that emphasize the importance of early intervention and how best to support people who receive a late diagnosis. Atherton explains that diagnosis directly affects quality of life, making detection and diagnosis critical for adults. She notes that further research must incorporate lived experiences and underscores the need for investment in care across the lifespan. 

Take the knowledge quiz for this presentation HERE

In this webinar: 

2:30 – Autism prevalence estimates
5:00 – Diagnosis differences by gender
8:30 – Autism through the ages
10:30 – DSM description evolution
13:15 – Special education and the Salamanca Statement
17:10 – Changes in autism assessments
18:20 – The lost generation
21:00 – Study: Age of Diagnosis, Autistic Traits, and Quality of Life
23:25 – Results
27:00 – Quality of life and aging
31:00 – Study recap
31:30 – Study: Lived experiences of late diagnosed adults
33:20 – Themes and results
34:25 – Participant quotes
39:00 – How to disclose
41:20 – Overview of study results
44:35 – Future directions
47:22 – References and contact information
47:30 – Q &A

Introduction

Atherton states that autism is a lifelong condition and highlights that less than 1% of research funding goes to lifespan issues in autism. She discusses differences in prevalence rates by country and gender (3:20) as well as environmental and heritability drivers (6:30). The speaker provides a brief history of autism understanding through the ages, highlighting significant milestones and epidemiological studies from 1943 to today (8:30). She details changes in autism prevalence from 4.5 in 10,000 children in 1966 to 1 in 54 children in 2013 (11:30). Atherton attributes the rise in prevalence to improved diagnostic practice and increased awareness and educational inclusion (12:25)

The “lost generation” refers to autistic individuals who received an autism diagnosis in adulthood and therefore lost the time and support afforded to those who receive an early diagnosis (18:20). Atherton outlines two recent studies investigating why these individuals are being missed and how it affects their quality of life: 

Study One: Age of Diagnosis, Autistic Traits, and Quality of Life

The first study focused on understanding the impact of age of diagnosis on quality of life and autistic traits. Atherton and her colleagues examined a sample of individuals diagnosed with autism later in life by assessing responses to five autism diagnosis and symptom questionnaires (21:00). Findings revealed that about two-thirds of females were diagnosed over 18. In contrast, the majority of men were diagnosed under 18. Despite being diagnosed later in life, females reported high levels of autistic symptoms (24:45). There was a significant association between late diagnosis in adulthood and lower quality of life. These individuals reported higher levels of autistic traits, including social anxiety, loneliness, and lower satisfaction with life. In contrast, earlier diagnosis was associated with better quality of life outcomes (29:15).

Study Two: Qualitative Interviews with Late Diagnosed Adults

The second study involved qualitative interviews with adults who received an autism diagnosis later in life (31:30). Atherton highlights the importance of exploring their lived experiences to gain insights into the challenges and benefits of late diagnosis. Themes found during interviews included barriers to diagnosis, negative sentiments to non-diagnosis, benefits of diagnosis, and the pros and cons of receiving a diagnosis (33:20). The speaker quotes study participants for each theme, demonstrating the intersectionality of late diagnosis and quality of life. Overall, participants overwhelmingly expressed positive sentiments about receiving a diagnosis in adulthood. One person described it as a signpost that provided answers and guidance on how to approach life differently and feel proud of one’s identity (37:29). Diagnosis brought relief, clarity, access to appropriate support, and personal advocacy. However, participants also expressed some barriers to diagnosis, such as parental perceptions and societal misconceptions about autism (39:20).

Implications of Late Diagnosis

Atherton asserts that these findings underscore the significance of early diagnosis in autism (41:25). She highlights diagnostic disparities between men and women and considers potential drivers. The speaker emphasizes that receiving a late diagnosis matters and assures viewers that, although a late diagnosis may be complex and confusing, the identity and understanding that come with it can have a significant positive impact on personal acceptance (43:15). Early detection enables timely interventions, tailored educational approaches, and access to support services, all of which contribute to better outcomes for autistic individuals.

Future Directions

The presenter highlights the need to recognize autism in females and change stereotypes of autism as a male condition. We must also reduce stigmas, continue care into adulthood, and support the “lost generation” as they realize their diagnoses. She asserts the need for increased research into cultural differences, societal perceptions, and access to diagnosis and support (45:00). The speaker also discusses the significance of studying the experiences of individuals from diverse backgrounds, including women, people of color, parents of children with autism, and employment experiences of autistic people.  

The speaker:
Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston, and a Ph.D. in Educational Psychology and Individual Differences from University of Houston. She has previously lectured at University of Houston and the University of Wolverhampton. Prior to entering academia, Gray was a counselor for adolescents with neurodevelopmental conditions. “I am interested in understanding how people with autism spectrum condition see the social world. Specifically, I explore individual differences in social processing and how these differences often found in people with autism also exist in the general population. I also investigate anthropomorphism, or seeing the human in the non-human, and how this relates to social processing in autism. To investigate this I am developing virtual reality techniques that allow for anthropomorphic experiences. My other research interest lies more broadly in embodied social processing. I am particularly interested in how movement can affect the way we see ourselves and our social partners, and how this can be used to understand special populations.”

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Autism and Pica https://autism.org/autism-pica/ Tue, 11 Apr 2023 18:03:58 +0000 https://last-drum.flywheelsites.com/?p=15666 Dean Alexander, Ph.D., discusses pica, the ingestion of non-food substances, which has received insufficient attention as a common, sometimes lethal, form of self-injurious behavior. He discusses the prevalence of pica in autistic individuals and the long-term health implications associated with pica behavior. The speaker details numerous case studies and highlights the need

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Dean Alexander, Ph.D., discusses pica, the ingestion of non-food substances, which has received insufficient attention as a common, sometimes lethal, form of self-injurious behavior. He discusses the prevalence of pica in autistic individuals and the long-term health implications associated with pica behavior. The speaker details numerous case studies and highlights the need for multidisciplinary collaborative treatment strategies based on functional behavior assessments. Alexander describes available treatment strategies and presents the SMART acronym for treatment recommendations. e.

Handouts are available for download (PDF) HERE
Take the knowledge quiz for this presentation HERE

This is a joint presentation by ARI and the World Autism Organisation.

In this webinar: 

2:12 – What is pica
5:22 – Study: Soda can and rubber ball
8:00 – Challenges with behavioral treatments
13:00 – Sensory stimulation and pica
14:20 – Pica prevalence and impact
16:08 – Study: GI symptoms and pica
17:30 – Study: Autism, GI symptoms, and pica
19:00 – Study: Pica prevalence in autistic adults
25:25 – Pica as a phenotypic subgroup
26:30 – Studies: polyvisol, vivinex, iron supplements, zinc and antioxidant therapy
29:46 – Metabolic profiles and phenotypic subgroups
31:57 – Why nutritional interventions
34:04 – Comprehensive vitamin-mineral interventions
36:10 – Dietary changes
38:21 – Study: Homeopathic treatment
44:28 – SMART interventions

Pica and behavioral treatments

Pica is the ingestion of inedible substances and is the most dangerous form of self-injurious behavior associated with autism (2:12). Items frequently ingested include generally harmless things like dirt, leaves, and grass, as well as dangerous and potentially lethal items like rubber gloves, clothing tags, and screws (3:30). Alexander details a case study involving a 50-year-old autistic man who ingested cigarette butts. The presenter explains how treatment strategies capitalized on the individual’s preferences by incorporating soda cans and a red rubber ball into his walk to work. Over six months, the client’s nicotine and cotinine levels decreased from those of a chain smoker to zero (5:22). Alexander highlights the simplicity of this case, noting the trial and error implicit in creating holistic treatment strategies (6:43)

Establishing effective behavioral treatments for pica can be challenging due to costs, availability, environmental restrictions, and the generality of treatments across time (8:00). The presenter notes the importance of functional behavioral assessments, which help identify the factors that drive and maintain pica behavior, like attention-seeking, sensory issues, pain attenuation, or escape/avoidance (11:00). Sensory stimulation, he continues, is often a significant factor in maintaining pica behavior and can be challenging to address. Solutions to sensory drivers can include finding substitute foods with similar sensory properties (i.e., grape nuts in place of dirt) or engaging individuals with play during unstructured hours (13:00). The presenter notes that pain attenuation is often related to dental issues (14:01)

Pica Prevalence and Impact

Around 23.2% of autistic children and up to 60% of autistic adults experience pica (14:20). The speaker outlines two studies on the intersection of autism, pica, and GI issues in children (16:08). Researchers found that autistic children and children with developmental disorders who also have pica have a higher prevalence of GI signs, symptoms, and diseases compared to those without pica (15:24). Prevalence of food cravings and specific GI conditions like irritable bowel syndrome (IBS) and gastroesophageal reflux (GERD) are also higher in autistic children with pica than those without (17:30). To assess the prevalence and co-occurring conditions in adults, researchers examined ten years of medical records compared to a comprehensive list of symptoms and diseases (19:00). Four groups were assessed: autism only, autism and pica, pica without autism, and a control group of developmentally disabled individuals without pica. Findings revealed that the prevalence rates across the ten most frequently occurring diseases were two to three times higher for individuals with pica, where the autism and pica group had the highest rate (22:33). Alexander emphasizes that pica takes a severe toll on the body over time which can lead to shorter life expectancy and higher mortality rates. He asserts that autistic individuals with pica may represent a phenotypic subgroup characterized by GI symptoms and requiring specialized treatments (25:25)

Intervention Options

Alexander outlines research showing that autistic children have relatively less diversity in gut bacteria and generally have fewer healthy bacteria than unhealthy (30:55). These findings emphasize the importance of including nutritional interventions in treating pica. The speaker underscores that dietary interventions do not necessarily rely upon practitioner availability and so may be more accessible (27:36). He details promising research using iron supplements, liquid multivitamins (poly-vi-sol), specialized formulations (vivinex) (26:30), and zinc supplements and antioxidant therapy (28:42) to reduce pica behaviors like coprophagy (ingestion of feces) in autistic individuals. The presenter discusses a study that revealed significant differences in metabolic profiles between autistic children and their non-autistic peers (29:46). Targeted nutritional therapies, including folinic acid, betaine, and methyl B12, succeeded in correcting metabolic imbalances. Alexander asserts these findings suggest the presence of a metabolic phenotype and that aspects of autism are treatable. 

Maintaining a healthy gut is critical for the body’s ability to fight infection, digest food and produce vitamins (31:57). The presenter outlines other nutritional treatment approaches, including gluten-free, casein-free, and Mediterranean diets (37:17), as well as comprehensive vitamin-mineral interventions (34:04). Alexander details a case study where a seven-year-olds pica behaviors stopped just one week after implementing a gluten/casein free diet (36:10). The speaker summarizes the behavioral, dietary, and vitamin/mineral based interventions and highlights the need to try and assess each strategy. He outlines a homeopathic treatment study that showed remarkable improvements in a 15-year-old boy with severe autism. Supplemental behavioral interventions alongside homeopathic recommendations significantly improved the child’s functions, behavior, communication, and quality of life (38:21)

S.M.A.R.T. Interventions

Alexander highlights the need for collaborative treatment strategies and introduces the SMART acronym for treatment recommendations (44:28)

Safety: Safety precautions are critical. Potential dangers and treatment environments must be appropriately assessed based on individual needs.

Medical issues related to eating habits, food cravings, stomach pain, antibiotic use, and mouth sensitivities must be addressed. It is best to be assessed by a team of professionals including, but not limited to, a dentist, GI specialists, and nutritionist (45:33)

Analysis/assessments of behavior function and consequences are best practices. Such assessments are critical for accurately identifying drivers and potential treatments for pica behavior (47:40)

Reinforcement inventory or a “menu” of activities or objects that help minimize Pica behavior (e.g., soda cans and rubber balls). These can aid in implementing differential reinforcement strategies and finding alternatives. 

Treatment packages or a combination of various approaches to create a collaborative treatment strategy. Treatment packages include psychotherapy, pharmacological treatments, behavioral techniques, and nutritional support. Such holistic therapies are generally the most effective (49:44)

Dean Alexander, Ph.D., discusses pica, the ingestion of non-food substances, which has received insufficient attention as a common, sometimes lethal, form of self-injurious behavior. Behavioral approaches to treatment, more often than not, fall short. Biological intervention, if supported, may hold out new promise.

Handouts are available for download (PDF) HERE

This is a joint presentation by ARI and the World Autism Organisation.

About the speaker:

Dr. Dean Alexander has worked at centers for children with physical handicaps and emotional disturbances and adults with developmental disabilities (Lanterman Developmental Center) before entering Claremont Graduate University, Claremont, CA. At CGU, Dr. Alexander teamed up with Dr. Laura Schreibman, then worked on Dr. Ivar Lovaas’s landmark Young Autism Project; this led to a case study and a co-authorship of Dr. Lovaas’s first two books. Returning to LDC as a psychologist, he co-authored the first behavioral treatment of pica while gaining familiarity with nutritional and vitamin-driven approaches through literature and conferences presented by the Autism Research Institute.

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Pet Ownership and Autism https://autism.org/pet-ownership-and-autism/ Wed, 16 Nov 2022 03:53:58 +0000 https://last-drum.flywheelsites.com/?p=15382 Gray Atherton, Ph.D., discusses pet ownership as it relates to autistic individuals. She gives context for the importance of this topic, details the theories underpinning her research, and outlines her recent mixed-method studies. The speaker describes differences in the directness of animal communication compared to human social cues and underscores the

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Gray Atherton, Ph.D., discusses pet ownership as it relates to autistic individuals. She gives context for the importance of this topic, details the theories underpinning her research, and outlines her recent mixed-method studies. The speaker describes differences in the directness of animal communication compared to human social cues and underscores the positive relationship between pet ownership and mental health for autistic people. Atherton describes themes in her qualitative research, noting potential barriers and breakthroughs. The presenter provides ideas and solutions for future research and application directions and introduces the research team before opening the question and answer session.

Learn more about our speaker, Gray Atherton, Ph.D. HERE

Take the knowledge quiz HERE

In this webinar

0:59 – Agenda
1:55 – Introduction and context
3:31 – Theory behind animal connections and autism
5:15 – Eye gazing serotonin feedback loops
7:02 – Visual cues in animal interactions
8:58 – Mixed methods approach and study outlines
10:39 – Study: Autistic vs. non-autistic pet ownership survey
15:11 – Equal animal attachment across groups
17:15 – Pet attachment and mental health in autism
17:34 – Study: Real-life applications for pet contact
18:40 – Themes from research
19:25 – Sensory benefits
20:31 – Companionship
21:08 – Judgment
22:56 – Social lubricant
24:37 – Barriers
26:33 – Responsibility as a breakthrough
27:43 – Challenges
29:00 – Ideas, solutions, and future directions
30:54 – Volunteerism
32:09 – Mentoring
33:25 – Ways to start
36:25 – Presentation summary
37:26 – Research team
38:06 – Q & A

Summary 

Research shows that autistic people prefer interactions with animals over humans and that 80% of autistic children have participated in pet therapy. This, the speaker asserts, gives context as to why pet contact in relation to autism is an important topic (1:55). The Biophilia Theory, as described in Atherton’s recent publication (3:31), asserts that humans innately love nature and seek connection with other forms of life (4:45). Most of human history, she continues, has been lived in a direct relationship with nature which allowed humans and domesticated animals to evolve in stride and foster a connection of love and affection (6:15). For example, studies have revealed that when humans and dogs exchange eye gazes both participants experience an increase in serotonin, creating a serotonin feedback loop. Therefore, humans have a profound physiological and biological connection with domesticated animals. (There is an emphasis on domestic animals as such feedback loops do not occur in gaze exchanges with wolves)  (5:15)

Atherton explains that, although autistic individuals often avoid human eye contact, eyes are one of three focal points they consider when interacting with animals (7:02). The speaker implies this trend could be because animals give much more direct social cues than humans – as there are no contradictory social signals to puzzle together (i.e., contradicting words and facial expressions), animal behavior is more straightforward to interpret (8:03). The presenter details another recent study and the mixed method approach they used to discover outcomes and themes of pet ownership among autistic individuals (8:58)

Experiment 1: Researchers surveyed 700 adults, half of whom were autistic, on lifetime pet ownership, pet attachment, and mental health (10:39). Contrary to previous research, Atherton and her team found that autistic people are less likely to own pets as children and adults. They also found pet ownership corresponded with better life satisfaction (12:20). Atherton asks viewers not to distance this finding from its context, reminding them that the ability to own a pet likely corresponds with having a steady job and home, which innately increase life satisfaction. Pet attachment, she continues, is related to better mental health in autistic individuals (17:15). The study also found that autistic people use relationships with pets to compensate for social avoidance experienced as a result of social difficulties (16:15). Importantly, both groups exhibited equal attachment to pets, and the type of pet did not change the relationship quality (15:11). The presenter asserts that this fundamentally dismantles the assumed stereotype that autistic people lack emotional complexity and connection compared to the non-autistic population. 

Experiment 2: Researchers interviewed autistic participants about pet experiences to understand what real-life applications exist for pet contact (17:34). Atherton lists themes found in the research (18:40) and details several benefits of having pets. Sensory benefits, for example, include the touch of fur and scales, weight of an animal on one’s lap, and the bidirectional calming interaction of petting an animal (19:25). Animals also offer a type of social presence that allows individuals not to be alone, but does not apply pressure to perform or conform (20:31). Further, the speaker shares, pets can offer a solution to masking because there is no judgment as animals accept care and love in whatever form it’s given, which boosts owner confidence and self-esteem (21:08). Pets can also act as a social lubricant, opening connections between family members and the community (22:56). Barriers discovered in the study included economic standing and a personal fear or anxiety that, as an autistic person, one cannot be responsible for taking care of another being (24:37). However, she continues, the responsibility of pet ownership seems to spur a breakthrough in self-confidence and independence as it provides motivation to care for someone else and, therefore, a reason to get up, put the video game down, and ensure employment and housing (26:33)

The presenter reviews the challenges found in these studies (27:43) and provides ideas and solutions for future directions (29:00). For example, if pet ownership is unavailable, volunteerism can allow for animal contact and simultaneously create a connection with a community and job experience (30:54). Atherton suggests ways to start preparing for pet ownership (33:25), including fostering, starting with smaller pets, getting advice from a mentor (32:09), and more. The speaker summarizes the presentation (36:25) before opening the question and answer session (38:06), where she discusses equine therapy (39:04), mental health indicators (41:20), benefits to early childhood development (46:11), hoarding (48:50), the effects of pet ownership on aggressive behavior (55:15), and more. 

About the speaker, Dr. Gray Atherton
Gray Atherton, PhD, has a BSc in Child Development from Vanderbilt University, a Master’s in Counselling from University of Houston, and a Ph.D. in Educational Psychology and Individual Differences from University of Houston. She has previously lectured at University of Houston and the University of Wolverhampton. Prior to entering academia, Gray was a counselor for adolescents with neurodevelopmental conditions. “I am interested in understanding how people with autism spectrum condition see the social world. Specifically, I explore individual differences in social processing and how these differences often found in people with autism also exist in the general population. I also investigate anthropomorphism, or seeing the human in the non-human, and how this relates to social processing in autism. To investigate this I am developing virtual reality techniques that allow for anthropomorphic experiences. My other research interest lies more broadly in embodied social processing. I am particularly interested in how movement can affect the way we see ourselves and our social partners, and how this can be used to understand special populations.”

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Can’t see the quiz below? Take it online HERE

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